Made out good

2006-08-31 22:49:26

So far so good...the tumor hasn't grown any and didn't move....will be
getting a mammo done on the 14th...he is still keeping me on the pills
even tho I don't like all of the hot flashes...it's embaressing because
I can just stand for a few seconds and the sweat is pouring down my
face...yesterday was a very long day...Our Aunt & Uncle live in Lady
Lake so we waited all day to hear something...they were fine but we
still can't get through to them...phone lines are down...they were one
of the lucky ones ...their side of Lady Lake didn't get hit at
all...well had to let you all know....granddaughter is spending the
night so I have to tend to her...hope everyone is well.....
Oh and as for my foot...this weather kills it ...have to get used to
it5...have a pain patch to wear everyday ....helps some but I think
that I may have to go in so that they can take out the nerve...he said
that the patch can only last so long...take care everyone...Hugs...Marge

How is everyone??

2006-08-31 12:27:32

Just wanted to check in to see how everything is going??...go and see
my oncolgist tomorrow...these pills are really keeping me "HOT"...legs
pain alittle but not bad..been trying not to smoke and I am doing ok
with it no not reaaly!!...had one yesterday ...babysat and it got to
me....wish I was stronger...but it has been two weeks so to me one was
ok...right??..trying to keep busy with my house and on the PC playing
games and that helps me some with not smoking..like they said it's the
nigatine that your mind craves...and I'm craving it today but won't buy
any...well going to go...hope everyone is well..Hugs to all....Marge

the tisue split

2006-08-31 10:01:49

It may seem like a strange subject. But where I had a mastectomy
on the right side the mussel in the middle split. so there is no
mussel over the rib cage area. but I have felt a few new lumps that
fill like little peas but very hard and are getting larger.
I talked to my onocologest and she said there is nothing more she can
do to help me besides the chemo. which I am so tired of.
do any of you have the same problem and what should I do?

blood tests during chemo

2006-08-31 02:13:12

Does anyone out there know what all the blood work means?
what is the normal range for platlets
what is BUN
what is the normal range for white bc
what is the normal range for red bc
what else is important to keep track of?

Re:mastectomy done 11-9

2006-08-31 02:04:42

Hi Mary:
Sorry about being so long in getting back to you.
I didn't get the Herceptin. My onc. said it was too great a risk to my
heart. Since I was node negative and my tumor was 7mm, she felt the
risk too great. I tried to get it. I just felt and still do feel that
you have to fight her2neu with all the fight there is. But then again,
I do trust my oncologyst. I had my last rad, 10-05, which makes me a
little more than a year out. My last mamo in August showed an area of
concern in my left breast, same one of the lumpectomy. So I go back in
February for another mamo. Hopefully there won't be any change.
Anyway, I hope you are doing well.
Linda

Bad week

2006-08-30 19:08:05

this week has been so bad....can't stand the rain as it is killing my
foot ....wish we had snow ....these pills are giving me hot flashes
more than I want and I lost mry medical insurance cards...I am always
so careful with them..tore my house apart looking and my car...called
all over so I put an ad in the paper...have my MRI for tuesday so I had
to call my insurance company to find out what to do...they will pay for
it and the hospital can not reject my test's as they are
important...hope everyone is well...had to get on just to talk about
it..talk later....Marge

Need answer

2006-08-30 12:29:55

I went to see my Oncologist today and as always he is going to set me
up with an MRI and mammogram...and then he talked to me about a new
medication that is better than Tomoxifin....It's called
Raloxfene ...Has anyone heard of this medication???...he wants me to
try it for now as he said that I am such a high risk for my Cancer to
return and not being on anything doesn't help....so I am going to do
it...he said that I'll get more hot flashes...like I need that...and to
walk around alot to prevent blood clots...so any help would be
appreciated...going to go hope everyone is well...take care.....Marge

Hi All

2006-08-30 00:06:03

Just wanted to come on and say "HAPPY NEW YEAR"..and hope it's blessed
with alot of happiness to all of you....Marge

Hi Everyone

2006-08-29 20:20:56

As we all know the Holiday's are here...been quite busy with the final
shopping and baking...kids will be here Saturday for our
Christmas...getting quite excited as yes I did buy them alot but that's
what grandparents do...Right??...and no I haven't quit smoking
yet...she wants me to finish the wellbutrin and give it another chance
but if that doesn't work then I am going to ask her about the new
medication that is out there..I hope you all are well....miss talking
to eveyone...well going to go and have a very Merry Christmas
Everyone !!! Hugs ...Marge

Hi All

2006-08-29 18:29:12

I sure hope your Christmas was fine...I had a wonderful day with all of
my family...been shopping alraedy for next year....really good deals
out there...going to see my Oncolgist Jan,2nd so I'll know more
then...he will probably have me go for another MRI (hate that
thing)..love it when they give me the valiumn...I just want to say
"Happy New Year to everyone "...may it be a wondeful and fullfilling
year...Hugs to all.....Marge

Breast Cancer - Another Obesity Victim

2006-08-29 03:58:47

Breast Cancer - Another Obesity Victim
<http://www.clickaudit.com/goto/?41225
Obesity raises the risk of various types of cancer. And only 3% people
know that obesity increases cancer risks. According to a recent research
based on one million Americans conducted by the American cancer society,
14% of cancer deaths in men and 20% of cancer deaths in women occur due
to Obesity.
Read More <http://www.clickaudit.com/goto/?41225

mastectomy done 11-9

2006-08-29 01:24:55

Hello girls,
my mastectomy is history, thank you all for your support and prayers
that really did work miracles. The 5cm tumor turned out to be 1cm and
without any lymph involved and clean margins. I have had no pain
until now that it is healing and is sore and tender, but all in all I
am doing wonderful. I go to the onc dec4 and will find out what the
path report means.
DCIS and IDC
Invasion into nipple with Paget's disease
Does anyone out there know what her2-neu 3+ means and I am ER&PR Neg.
and what is angiolymphatic invasion present mean?
I am grade III
Mary

Re:mastectomy done 11-9

2006-08-28 23:59:02

Hi Mary:
I am Her2neu+++, ER/PR Negative. You will most definitely have chemo and
radiation. Only 25% of BC is Her2Neu+++. There are some great web sites out
there for information, one being www.HER2Genes.com , also www.y-me.org. There
is also http://www.her2support.org that is absolutely great.
Have a great day, and glad to hear that you are doing well.
Linda
Eye hath not seen, nor ear heard, neither have entered into the heart of man,
the things which God hath prepared for them that love Him.
I Corinthians 2:9

FW: Breast Cancer Update

2006-08-28 12:45:12

Watch the video below
_____
From: Breast Cancer Update [mailto:healthupdate@...]
Sent: Wednesday, November 15, 2006 3:16 PM
To: her_timid_heart@...
Subject: Breast Cancer Update
<http://healthology.sparklist.com/t/103171/17254413/4636/0/
November 15, 2006
Breast Cancer Update
<http://www.healthology.com/images/nl/spacer.gif
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<http://www.healthology.com/images/nl/spacer.gif
"DES Daughters" at Risk for Breast Cancer
Daughters of women who took the drug diethylstilbestrol (DES) during
pregnancy may be at a greater risk for breast cancer, say researchers. What
can these women do to lower this risk?
--
Article
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Editor's Choice: Are Some Breast Cancers Different than Others?
Certain breast cancers mean different things. Learn what tests can determine
the type of breast cancer you have, and how this information can affect your
treatment.
--
Video
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Deb?????

2006-08-28 10:30:35

So Deb how did you make out???...Let us know as I have I have been
worried about ya...My Car doesn't need a transmission after all...come
to find out my HUSBAND spilled oil and brake fluid and the smell was
all of it burning off..the ezhaust is starting to leak so he is going
to get that fixed...we took it to a transmission specalist ..told him
to do that last week and he kept on saying no as he knew what it
was...YEAH RIGHT!!!!!...still going to get the loan so that we can pay
some of the bills off and then I can start new...LOL...well going to
go...need to eat and need my tea....Later....Marge

debs turn

2006-08-28 07:51:25

Today I went it get my mammogram, third time but they finally gave in
saying they had my previous x-rays which were scanned into the system way
way back, closer to two years ago now, I went to have the blood work done
today for the oncologist tool now I guess I just wait until Monday at 1:30
to know if this yr and a half has left me cancer free,dang that was an
ordeal. No big red or blue veins u have ONE REALLY GOOD ONE BUT THE GUY
POKED AND PRODDED AND TWISTED THAT NEEDLE INSIDE NY FLESH TILL I COULDNT
CONTROL MY ANXIETY. WE FINALLYY GOT ER DONE SO I GUESS NIBDAY IS THE DAY OF
RECONING, I RECON WILL JUST HAVE TO ACCEPT WHATEVERR HE HAS TO TELL ME.
PLEASE EXCUSE MY TYPONG TONIGHT AS HAVE HAD A FEW ATVAB And A ZANAX TO GET
ME THRU THE NIGHT, DBVS TURNING INTO A WUSS, MARGE YOU GET RIGHT BACK UP
THERE ON YHAY CIGARETTE JOCKY AND BEAT THIS THING, WE ALL KNOW YOU CAN DO
IT! Debs scared y;all be glad when Monday comes so I can begin to put all
this behind me where it belongs,'
Deb '
Ps prayers please,,,,i've go to much going on that bc is actually the one
that fears me the most
Stay well
Deb

Cancer in Children - FYI ...not true

2006-08-27 21:41:58

Just wanted to let you know that this is not real. You can check it out on
www.snopes.com Just enter in Amy Bruce and this is what you get.
Amy Bruce
Claim: A 7-year-old girl named Amy Bruce is dying of lung cancer and a
brain tumor.
Status: False.
Example: [Collected on the Internet, 1999]
Hi, my name is Amy Bruce. I am 7 years old, and I have severe lung cancer
from second hand smoke. I also have a large tumor in my brain, from repeated
beatings The doctors say I will die soon if this isn't fixed, and my family
can't pay the bills. The Make A Wish Foundation, has agreed to donate 7
cents for every name on this list. For those of you who send this along, I
thank you so much, but for those who don't send it, what goes around comes
around. Have a Heart, please send this.
Origins: There is no 7-year-old girl named Amy Bruce dying of lung cancer
and a brain tumor brought on by "repeated beatings," nor will the
Make-A-Wish Foundation donate money to anyone based upon the number of times
an e-mail is forwarded. The "Amy Bruce" message is one of many variants of
the same basic hoax, one which falsely claims that the American Cancer
Society, the Make-A-Wish Foundation, or some other charitable or medical
organization will donate a set amount of money every time a particular
e-mail is forwarded.
The Make-A-Wish Foundation does not in any way assist in procuring medical
treatment for sick children. They do work to grant the wishes of youngsters
with life-threatening medical conditions, but the Make-A-Wish Foundation is
about "enriching the human experience with hope, strength, and joy" by
helping to create special days for desperately ill children, not about
collecting donations to pay for medical care.

Made Out Good So Far

2006-08-27 15:35:22

They won't do surgery because my foot is worse than they thought just
like my Doctor said...he said that I would have to live with my foot
for the rest of my life and to continue to wear the brace...the problem
that they found was a lot of nerve damage so they wrote a a script for
patches to numb my foot...if it doesn't help then they have to take the
nerve out and I won't have the pain there anymore...I'd still beable to
walk but would have no feeling on the top part of my foot..I miss my
car as I always liked driving stopping at a park and just sit and
think...always did me good...hope everyone is well...take care...Marge

red meat

2006-08-27 06:41:10

Trying to send our local news info that came out today. It seems to pertain to
both groups.
Deb
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Red Meat May Raise Breast Cancer Risk
Study Suggests Cutting Back On Red Meat
POSTED: 4:55 am PST November 14, 2006
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CHICAGO -- Eating red meat may raise a woman's risk of a common type of breast
cancer, and vitamin supplements will do little if anything to protect her heart,
two new studies suggest.
Women who ate more than 1½ servings of red meat per day were almost twice as
likely to develop hormone-related breast cancer as those who ate fewer than
three portions per week, one study found.
The other -- one of the longest and largest tests of whether supplements of
various vitamins can prevent heart problems and strokes in high-risk women --
found that the popular pills do no good, although there were hints that women
with the highest risk might get some benefit from vitamin C.
The meat study was published in Monday's Archives of Internal Medicine. The
vitamin study was presented at an American Heart Association conference in
Chicago. Both were led by doctors at Harvard Medical School and were aimed at
two diseases women most fear and want to prevent.
Antioxidants like vitamins C and E attach to substances that can damage cells.
Scientists have been testing them for preventing such diseases as Alzheimer's
and cancer.
This is the first large study to test vitamin C alone, not in combination with E
or other vitamins, for heart health, said Dr. JoAnn Manson, chief of preventive
medicine at Harvard-affiliated Brigham and Women's Hospital in Boston, who led
the research.
More than 8,000 women were randomly assigned to take vitamin C, E or beta
carotene alone or in various combinations for nearly a decade. An additional
5,442 women took folic acid and B vitamin supplements for more than seven years.
"Overall, there was minimal evidence of any cardiovascular benefit of any of
these antioxidants," and people should not start or continue taking them for
that purpose, Manson said.
Among the 3,000 women in the study who had no prior heart disease but three or
more risk factors for it, those who received vitamin C alone or in combination
had a 42 percent lower risk of stroke. Smokers taking C also had a 48 percent
lower risk.
Vitamin E may give very small benefits for some women, the study suggests. Those
with prior heart disease had a 12 percent reduction in the risk of new heart
problems, Manson said.
"Many of these subgroup findings are intriguing. However, they need to be
confirmed in other studies," Manson said. "We don't want this to be interpreted
as a conclusive finding."
What does appear conclusive is that folic acid and B vitamins "are not effective
as preventive agents," said Dr. Christine Albert, who presented that portion of
the study at the heart meeting on Monday. These nutrients lower homocysteine, a
blood substance thought to increase heart disease risk, but many studies now
call the importance of that into question.
The meat study was based on observation rather than an experiment. The Nurses'
Health Study tracked the diets and health of more than 90,000 women who were 26
to 46 years old when they enrolled roughly two decades ago.
They filled out diet questionnaires in 1991, 1995 and 1999, and were divided
into five groups based on how much red meat they said they ate. Researchers
checked on their health for 12 years on average and confirmed breast cancer
diagnoses with medical records.
Meat consumption was linked to a risk of developing tumors whose growth was
fueled by estrogen or progesterone -- the most common type -- but not to tumors
that grow independently of these hormones.
The women who ate more red meat were more likely to smoke and be overweight, but
when the researchers took those factors into account, they still saw that red
meat was linked with an increased risk of breast cancer.
Earlier studies have found that obesity raises the risk of breast cancer and
that red meat raises the risk of colorectal cancer.
"Our study may give another motivation to reduce red meat intake," said study
co-author Eunyoung Cho.
However, Dr. Anne McTiernan of the Fred Hutchinson Cancer Research Center in
Seattle cautioned that the findings rely on women's recall of what they ate - an
inexact way to measure diet.
"A 16-ounce steak and a three-ounce piece of meat are counted the same. People
are horrible at determining what is a real serving," said McTiernan, author of
"Breast Fitness," a book on reducing cancer risk.
It may be wise to cut down on red meat because of its fat and calorie content,
McTiernan said, but "this isn't a reason to become a vegetarian if you weren't
planning to do that already."
Copyright 2006 by <http://www.nbc4.tv/news/2455821/detail.html
Press. All rights reserved. This material may not be published, broadcast,
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Hi All

2006-08-27 02:19:56

Going to UCONN today so I won't be on....will let ya all know what they
say....getting really nervous...and yes I'm smoking again...it sure is
hard to quit when I have so much going on plus my friggen car broke
down...blame my husband for that he was always using it....need a
transmission so now we have to take out a loan to get it fixe3d...lucky
me...told him that I need my car ...hate staying home all the
time ...some days I really feel trapped...well going to
go ...later....Marge

Headaches - TIA

2006-08-26 21:29:47

I have been having headaches for the past two months and pain and
tenderness in the back of my scalp. The onc. did a MRI which showed
low CFS (cerebral spinal fluid) in my brain. So I went to a
neurologist. He seemed to think it was tied to my allergies and said
we would take a wait and see approach. I went to the ENT specialist
and he did a ct scan of my sinuses and that came back perfectly
clear. Then, last night I was sitting in my chair about to call my
mom and ask her to pick up my youngest son from school because I was
very, very tired. All of a sudden my fingers started tingling and
then went numb. It moved to my hand, arm, face, left side of my back
and then around to the front of my abdomen, and then down through my
leg -- all of it on the left side of my body. This went on for a
good solid 10 minutes. I called MD Anderson and they said to get to
the nearest emergency room. ER Doc said I had a mini-stroke (TIA)and
that very likely it is related to all these headaches. I've called
the neurologist this morning and am waiting to hear from him.
I'm wondering....has anyone heard of Femara causing this type of side
affect? I've been on it for 3-1/2 months now. The headaches started
about 2 months ago.
As for my other tests...things are going good there. Blood work is
still looking very good. CT Scan of my liver showed just a tiny,
tiny growth of the tumors so they think the liver is trying to move
into a stable pattern. They decided to keep me on Femara for another
month and just watch my counts and liver closely.
Terri
in So. Texas

FW: AICR October e.Newsletter

2006-08-26 20:41:32

Don't know if any of you receive emails from AICR so i thought i would pass
this newsletter along to the group.
Be well my friends. Mellissa, how are you doing now? Marge? Everyone??
Deb
_____
From: AICR [mailto:enews@...]
Sent: Thursday, October 12, 2006 10:57 AM
To: her_timid_heart@...
Subject: AICR October e.Newsletter
Having trouble <http://www.aicr.org/site/R?i=DmOQ9MEnJuuOLemifOQ6MA..
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e.NEWSLETTER <http://www.aicr.org/images/content/pagebuilder/14305.gif
October 2006 ON DIET, NUTRITION AND CANCER PREVENTION
Issue 4
Welcome from
Marilyn Gentry
Marilyn Gentry <http://www.aicr.org/images/content/pagebuilder/13593.jpg
For Breast Cancer Awareness Month, we're offering a three-part action plan
to help women lose weight and reduce their risk of breast cancer.
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Mary

2006-08-26 12:03:00

Hi Marge,
My friend Mary never got the invite you sent for her to join the
group she has her Masectomy on Thursday and she really wants to join
this group her email address is mbgrandmom@....
Thank You.
Peggy

The "Drive through mastectomy" MUST BE STOPPED

2006-08-26 04:23:33

Subject: Mastectomy Hospital Bill (not a joke)
STOP - Please, Do Not Delete This.
*************************
Mastectomy Hospital Bill in Congress
(I'm sorry if you receive this more than once)
<
lot of discomfort and pain afterwards. What you might not be aware of, is
how Insurance companies are trying to make mastectomies an outpatient
procedure.
<
after surgery. It takes 2 seconds to do this and is very important... Please
take the time to do it. Just 2 seconds of your time...!
Breast Cancer Hospitalization Bill - Important legislation for all women.
<
time when our voices and choices should be heard, this is one of those times
If you're receiving this, it's because I think you will take the 30 seconds
to send this issue on to others you know who will do the same. Here's why.
<
require insurance companies to cover a minimum 48-hour hospital stay for
patients undergoing a mastectomy. It's about eliminating the "drive-through
mastectomy" where women are forced to go home just a few hours after surgery
still groggy from anesthesia, in shock & pain, and with drainage tubes
still attached.
<
drive to show your support. Last year over half the House signed on.
<
give more than your name and zip code number.
http://www.lifetimetv.com/health/breast_mastectomy_pledgehtml
<
This takes about 2 seconds. Then, PLEASE PASS THIS ON to your friends and
family, and on behalf of all women.
Thank you
Get FREE company branded e-mail accounts and business Web site from Microsoft
Office Live

Re:Marge

2006-08-25 19:53:33

Hi Melissa,
I still have my foot as of right now...I will find out on November
14th about everything...they can't take out the screws and plate and
put new ones in as I don't have enough bone left...he said that it is
getting worse...he wants a second opinion before he does anything...I
did let him know that if any surgery was to be done it had to be done
close to home...I also have a few cysts on the part of my foot that you
bend so he is concerned about that...the hospital that they have me
going to is like a hour away and I would rather be close to home...the
hospital that I do go to is like 5 minutes away from my house..I am so
glad to hear from you...you have been through so much for a women your
age...how are things with you and your Dad???...I know been lazy
writing..got tired of being on the pc ...was on it alot playing games
as I got so bored...would be nice if I had a friend to just have tea or
coffee with...granddaughter is still here she wanted to spend the
night...she was good to my surprise...well going to go as she needs me
again...all the time:).....take care will write soon...Marge

[breast_cancer_support_group] Re:Marge

2006-08-25 15:57:21

Hi Marge!!
It is so good to hear from you. I'm sorry to hear about your foot. Do you
still have have your real foot? Or is it surgery that you are talking about
that is where they are going to take it off? And then you'll be needing a
prosthetic? I'm a little confused on that part. If so, I am so, so, so
sorry. I can't imagine. My prayers are with you!!
I get so tired of people when I tell them about how I hate my scar, and they
say to me well...who else is gonna see it but you and your husband???
WELL!!! I DO HAVE to see it!! And I still DO want to look beautiful as any
woman would. Right?? It doesn't matter that no one else will see it but
the 2 of us. I want to look in the mirror and believe that I look good.
Not like Frankensteins bride! But, through this whole process I have tried
to remain positive. It's been a lot to go through for any woman, but I JUST
turned 30 and still being young it DOES make it harder. People/friends my
age just don't get it. They just want me to be done with it all. They'd
rather me just be "normal" again. Whatever that is. Right? You've always
lifted my spirits. Thank you so much for that. Please write me and let me
know how you are, because I know it's been a while since you wrote me.
Sending lots of love your way....
Melissa
Hi Melissa,
So glad to hear from you...sorry to hear about your surgery..I
have a half moon done on mine also from where they took the tumor
out..so I know how you feel about the scar..I've tried everything
that there is to fade it but it didn't work..been busy getting things
in order and putting away the summer stuff..have to get the air
conditioners out of the windows soon..I went to see my foot doctor
and things are worse than they thought...I have to go to UCONN
Hospital on November 14th now...had an appointment in December but my
doctor told them that he didn't want to see me wait that long..he has
told me up front about everything...if they can do ankle surgery that
would work he would do it but he said that there is to much damage
plus I have cyst in the top part where you bend it..so I will find
out what this guy says..I told them that I would not go to UCONN to
have surgery as it is like an 1 hr or more to get there...and I want
to be close to home...they are also checking in to see if Medicare
will cover a prospectic foot..guess I have to learn to deal with it
as I have no other choice right now...as for the tumor in my other
breast it's still there got a little bigger but they said that I can
wait to get it taken care of...I am so glad also that you found your
Dad...now you have you have family who cares and will help you with
your journey...was really worried about you...keep in touch and God
Bless you..hope everyone is well...take care all..Marge

Mary Jo's Niece

2006-08-25 10:46:36

Hi Mary Jo.
My heart goes out to you. And I will surely remember you and your family in my
prayers. As I do everyone on this group.
I am not by any means an expert. I have had breast cancer, and will be soon
classified as a one year survivor. My doctor didn't classify me as a one year
survivor my first anniversary of diagnosis. She said you had to be one full
year out from treatments. Anyway, I took treatments with a young lady (she was
about 34). I live in Mississippi, and she was getting her treatments at the
cancer center in our area, but was a patient at MD Anderson. She was taking the
same treatments that I was because we were both Her2Neu+++. My tumor was less
than 1 centimeter, her was about 4 centimeters I think. They treated her before
she had a bi-lateral mastectomy and reconstruction. (They did her
reconstruction with her belly fat). The got Herceptin which I didn't because I
was also negative for lymph node involvement. I have had liver scans, bone
scans, MRI's, and cat scans. I pray that it is not in her liver. But there is
treatment. Maybe not a cure, but there is still probably a long life ahead of
your niece. There are some web sites and support groups relating to Her2Neu.
You didn't mention about that, but some of the ladies there have been in
treatment several years and started with stage IV.
Anyway, I just wanted to hopefully give you a little hope.
Linda
Linda
Eye hath not seen, nor ear heard, neither have entered into the heart of man,
the things which God hath prepared for them that love Him.
I Corinthians 2:9

My friend Mary

2006-08-25 04:57:36

To one of the Moderators of this group can you please send my friend
Mary an invite to this group she has been diagnosed with BC and needs
support.
Her email mbgrandmom@...
Thank you so much
Peggy

Hello Everyone, Becky

2006-08-25 01:55:02

I am so very sorry to hear about your Mom. It is hearing of things like
this that truly scare me to death. I hope that I have many years ahead of
me, and that, that doesn't happen to me. I will be praying for you, and ask
that God just wraps you and your Mom in his loving arms. I feel sometimes
as though with as much as I cry that I will make the cancer come back. You
know how they say if you're positive your chances are so much better, but if
you are negative it's more likely to come back and with a vengeance????
Well, I can't help but feel that crying is only negative, and that I'm
bringing myself to the grave faster. Please someone tell me that I am over
exaggerating my thoughts??? I try so hard to be positive, but I have no one
here that understands what I'm going through. So, people just usually stay
away from me, and I know that it's sometimes because people just don't know
what to say to someone in "our" condition sometimes. But, that puts me all
alone day in and day out. I only have my husband when he gets home from
work. And my kids when they get home from school. But all they do is fight
all the time and stress me out anyway. I do attend a support group here
every now and then. But half the time I forget about it, and it's because
it is so far away. It takes us about 30 or more (depending on traffic) to
get across town to get there. And it's at night on a school night which
makes homework and the "nightly school night routine" hard to keep up with.
I just got in contact with my birth Father for the first time 2 days ago.
And I have family that has been contacting me via e-mail that I never knew I
had. I'm finding out of brothers and sisters that I never knew I had also.
This has ALL just been SOOOOO overwhelming.
I had surgery 4 weeks ago today. For ONE of my breasts to be reconstructed.
Now I have a stupid (as I call it) "football shaped" scar on my breast
which I DID NOT want. But the plastic surgeon said it was un-preventable.
Is that true? I don't want another scar like that on my other breast when I
go in to have surgery on it in December!!!!
Can you tell I needed to vent? I'm so glad that I have been seeing posts
again. I cannot wait to hear from some of you. How are you Marge and
Deb???? Good I hope. Your e-mails really uplift me. Thank you.
You are ALL always in my thoughts.
LOVE,
Melissa

thank you for your support

2006-08-24 19:39:02

Thank you everyone for your support. This has been very difficult, to
say the least. The hospice nurses have been great about keeping mom's
pain under control, and keeping her as comfortable as possible. She
will soon be gone and her suffering along with it. At least she
conciously doesn't know what is going on. I don't think that I could
handle seeing her scared of what is to come. Thank you again.
Becky

Skin Care in Breast Cancer Situation

2006-08-24 04:18:44

Skin Care in Breast Cancer Situation
<http://www.clickaudit.com/goto/?35119
As we recognize Breast Cancer Awareness Month, I could not help but
think of women whose skin changed during radiation and chemotherapy and
they are not sure what to dothe good news skin problems are usually
short term and easy to fix. Something proactive for you to do, something
to help you feel better.
Read More.. <http://www.clickaudit.com/goto/?35119

Hi everyone

2006-08-24 03:44:39

I'll reintroduce myself. My mother was diagnosed with breast cancer
is September and had her masectomy the beginning of October. Anyway,
she went through all of her chemo and radiation, and got her clean
bill of health at the end of June. In August she started getting
mild headaches that would go away with some Advil. Well, about 6
weeks ago, she had such a severe migraine that we ended up taking her
to the ER. A CAT scan showed tumors on her brain, and that they were
inoperable. They did 15 radiation treatments, but the only thing
that accomplished was making her lose her hair all over again. So we
are in hospice care now at the hospital and she doesn't have much
time left.
I'm not trying to scare you ladies, but rather I want to make you
aware that breast cancer is survivable, but it can spread. Just make
yourself away of the symptoms that can occur with other types of
cancer. Also, the PET scans cannot be used to diagnose tumors in the
brain. So if that is a concern of yours, please ask your doctors to
use other methods of checking. Also, it appears from my research
that hormonally based breast cancers are less likely to spread. My
prayers are with you all, and God Bless.
Becky Soodsma

Hi Everyone - New to Group

2006-08-24 02:04:16

My name is Terri. I'm on my 2nd go-round with breast cancer. I was
originally diagnosed in 1997, had a mastectomy on right breast,
reconstruction, and 8 rounds of FAC. Did 5 years of tamoxifen and
thought all was good. March, 2006 I went to the dr. complaining of hip
pain and found out that my bc had mets to bones, liver, and lungs. I
started 16 weeks of Taxol with monthly infusion of Zomeda. I am now on
Femara daily and go to MD Anderson only once a month for bone meds.
Lungs have cleared up...liver is getting better and bones are stable.
Stable works for me. Never have been one for support groups (don't have
time in the evenings) but feel the need to reach out. This cancer is
something I will live with the rest of my life but I plan on that being
quite a long time. Too stubborn to give up!!! Email me anytime.

hi

2006-08-23 11:23:16

i am new to the group....i just wanted more information cause my mom
is a breast cancer survivor..i wanted to THANK everyone for making
this group possible...

Hello

2006-08-23 10:19:05

I have been lurking around in this group since July when I was first
diagnosed. I am a 35 year old single mom and was diagnosed with stage 2
IDC no nodes involved or lymph invasion ER and PR postive and her2
negative. I have had one round of AC so far, three left to go. Then I
will have 6 and a half weeks of radation. I had a lumpectomy with a
breat reduction and lift at the same time. I figured as long as I have
to go though all of this I may as well do it with a nice set of boobs.
Anyway, I just wanted to post a hi and hello to you all and let you
know that I have gained so much strength just from reading all your
posts.

One more thing

2006-08-23 01:36:32

If everyone can please go to the Breast Cancer site and do some
clicking as they need our help and I found some wonderful Christmas
gifts to give from them so keep that in mind also....take care..Marge

Hi Everyone

2006-08-22 21:06:08

Been busy going through so many test's before surgery...getting really
nervous..as they said we have to do these because of your AGE...like
they had to remind me..Deb have to find out how you are doing??...are
you in the path of the fires there???...Melissa...I hope that you are
doing well these days...been thinking of you and all that you are going
through...and Peggy...one of these days we have to meet..since our
husbands are so much alike in their own ways...just had to let ya all
know for right now I'm still here but after October 11th I will be
having a hard time getting around as I won't beable to climb my
stairs...did order a disk for my laptop to get it fixed but it was the
wrong one that they sent...hope everyone is well...Hugs to All
Marge

Update

2006-08-22 10:00:17

Thank you to all you ladies for the well wishes. I go for my genetic
test results tommarow. Someone told me that I have to try and look
at it this way... my body already knows the results. I am just going
to get armed with the knowledge to make the best choice for me.
I plan on just continuing to live life and if the cancer retuirns I
will deal with it. I think it is more important for me to know the
results so if I am able to have children I will know the best way to
protect them from this.
The fertility tests I think will be more of an emotional ride for
me. I love kids, kids tend to love me too and I have ALWAYS wented
to have kids. I want to be able to make my boyfreind a daddy some
day, I want to make my parents grandparents some day, I WANT TO BE A
MOMMY!! Just knowing a may not be able to do any of the above may
just send me over the edge. I know I can adopt, or get a serroget
mother, but there is nothing like you and yuor significant other
creating a child together. I may be jumping the gun here, maybe
everything will be ok. Guess I am just scared. :o)
Anyways, I will be sure to keep you all posted. Thanks again for the
support. What a wonderful group of people!!!!

Nervous !!!!!!!!!!!!!!!!!!!!!!

2006-08-22 09:12:52

Well I went to see the Doctor on Friday...what a day it was...my
appointment was for 1:20 and he was late...when I did see him they
took xrays and the cyst that is in the part where my ankle bends got
bigger and he doesn't know if he can do the surgery with it there.so
he sent me for a catscan and I didn't leave the hospital until
4:30..if he can he is going to take out the hardware that is there
and put new hardware in the top part of my foot...if it doesn't take
and I pray that it will they will have to amputate my foot...been a
long weekend..I never knew the amount of damage I did to my foot...I
haven't had that much sleep needless to say..alot to think about...we
went to my Dad's yesterday to talk to him and let him know...he just
looked at me and said it's been one hell of a ride for you over the
years...my Dad knows my emotions and strength more than my husband
does...glad I still have him...my younger sister was there and all
she mhad to say was get a second opinion...and you should find a
women docotr for everything...I have learned to ignore here lately
and it's getting easier to do...I trust all of my doctor's ...if I
didn't I wouldn't be with them...guess my emotions are high today
because it's September 11th...sad day to remember...I got a video
from a friend about it I sent it out but I want to send it to group
as I don't have eveyone's email...it is worth watching...made me bawl
like a baby...well going to go all...have a wonderful day and God
Bless Us All.......Marge

Update

2006-08-22 07:39:49

I hope all you ladies are doing well. I havn't been on in a week or
so. I just wanted to give you all an update:
I have desided to go foward with the genetic and fertility testing. I
am 23 and feel if there are complications now and I find it I will
have a better chance of correcting it or taking nesseccary precaution.
I told my boyfriend and he said he will be by my side with whatever I
deside to do. Please wish me luck and I will keep you all posted with
what happens.
Take care and have a great Labor Day weekend...
Jessica

FW: Research News: Weight Gain and Risk, Ovary Removal, Alloderm

2006-08-21 19:11:03

INFORMATION I THOUGHT WE MIGHT FINE INTERESTING. CLICK ON SOME LINKS HERE.
LOTS TO CONSIDER FOR MANY OF US
DEB

I NEED HELP!!!!!!!!!!!!!!!!!!

2006-08-21 16:42:18

Hello Ladies!!
I'm so sorry that it has been so long since you've heard from me. I am
still going through my "expansion" process and will be having surgery on the
14 of this month to have ONE of the breast reconstructed with the implant.
That is why I am writing...
When I started the expansion process I was told that I would have the
expanders put in under my skin and chest muscle, they would expand it over
time with saline, and then in the end they would replace the expanders with
implants. Well, instead of going into great detail, I have ended up having
to go to a plastic surgeon off base (a civilian Dr.) and instead of just
replacing the expander with the implant, he wants to take some of the
muscle/tissue from my back (diep flap) with the implant also to create the
best possible looking breast. He can also only do one breast at a time and
I am just so very tired of all of this. I just want it to be over! I want
the best result too though. I've just never heard of this procedure, and
wanted to know if any of you have or have even had it done????
I want to know and learn everything I can possibly find out about this. I
don't want something done to me that will "mess" me up or leave me
disfigured!!!
I feel so alone, and don't know who to turn to. My husband is of course
here for me, but he doesn't know anything either.
Can someone out there help me or give me some information or advice? It
would be SO greatly appreciated!!!!
Thank you with all my heart!
Melissa

Quiet

2006-08-21 13:56:26

Hi Everyone,
Been busy with cleaning before I go in for surgery...will find out
next Friday...was supposed to go today and they changed it as the
doctor wasn't going to be back until late today..at least he went on
vacation...hate waiting...been doing alot of Christmas shopping to get
it out of the way as my husband would never know what to buy..with him
nobody would get just his daughter..and the kids would only get an
outfit and that would be it..we are supposed to spoil them as our
grandchildren...right!!!!!!..I have been having fun with it...we go to
tag sales and I have bgought alot of brand new unopened gifts for
everyone for under $5.00...cool huh..love shopping like that...Hey Deb
did you ever find the house that you were looking
for???...Melissa....How are you doing with everything??..I know I ask
alot don't I...well going to go hope everyone is fine and no I never
went away...he wouldn't do it..lucky me now I'll be stuck in the house
all winter with another cast..stuck now with no car so that sucks
to...have a good day all...hope to hear from everyone soon...Marge

mouse story

2006-08-21 04:15:55

Mouse Story ...
A mouse looked through the crack in the wall to see the farmer and his wife
open a package.
"What food might this contain?" The mouse wondered. He was devastated to
discover it was a mousetrap!
Retreating to the farmyard, the mouse proclaimed the warning.
"There is a mousetrap in the house! There is a mousetrap in the house!"
The chicken clucked and scratched, raised her head and said, "Mr. Mouse, I
can tell this is a grave concern to you but it is of no consequence to me. I
cannot be bothered by it."
The mouse turned to the pig and told him, "There is a mousetrap in the
house! There is a mousetrap in the house!"
The pig sympathized, but said, "I am so very sorry, Mr. Mouse, but there is
nothing I can do about it but pray. Be assured you are in my prayers."
The mouse turned to the cow and said, "There is a mousetrap in the house!
There is a mousetrap in the house!"
The cow said, "Wow, Mr. Mouse. I'm sorry for you, but it's no skin off my
nose."
So, the mouse returned to the house, head down and dejected, to face the
farmer's mousetrap-- alone.
That very night a sound was heard throughout the house -- like the sound of
a mousetrap catching its prey.
The farmer's wife rushed to see what was caught. In the darkness, she did
not see it was a venomous snake whose tail the trap had caught.
The snake bit the farmer's wife.
The farmer rushed her to the hospital and she returned home with a fever.
Everyone knows you treat a fever with fresh chicken soup, so the farmer took
his hatchet to the farmyard for the soup's main ingredient.
But his wife's sickness continued, so friends and neighbors came
to sit with her around the clock.
To feed them, the farmer butchered the pig.
The farmer's wife did not get well; she died.
So many people came for her funeral, the farmer had the cow slaughtered to
provide enough meat for all of them.
The mouse looked upon it all from his crack in the wall with great sadness.
So, the next time you hear someone is facing a problem and think it doesn't
concern you,
remember --
when one of us is threatened, we are all at risk.
We are all involved in this journey called life.
We must keep an eye out for one another and make an extra effort to
encourage one another.
REMEMBER:
Each of us is a vital thread in another person's tapestry; our lives are
woven together for a reason.

important info for us

2006-08-21 00:14:51

I have this problem due to heart bypass and the heart//lung machine so i
know how difficult this problem can be, before that and after that I had the
stresses of breast cancer/thesurgery and the radiation which seemed to make
things worse. Therefore I thought some of you might benefit from this
information.
Love as always,
Deb
Read on
You are receiving this email because you signed up for breastcancer.org's
Email Updates. To unsubscribe, please follow the link at the bottom of this
email.
****************************************************
Dear breastcancer.org Community Member:
"I just got back from a meeting, but I have no idea what we discussed."
"My family reunion was the biggest event of the year, and I forgot about
it!"
"I saw the gas gauge on empty, didn't really think about it, and ran out of
gas in the middle of the highway."
If you are undergoing or have recently finished treatment for breast cancer
and you seem to have more trouble concentrating and remembering than you did
before, you're probably not imagining it. Clear memory and concentration --
sometimes called "cognitive function" -- can be a challenge during and after
treatment.
In people treated for breast cancer, a wide variety of factors can affect
cognitive function: emotional stress, the effects of chemotherapy on clear
thinking (sometimes called "chemo brain"), whether you've been through
menopause, and more. Breast cancer and treatment-related thinking challenges
are not usually permanent, but they can make things difficult when they do
happen.
Join the conference next Tuesday, August 15th between 9:30 p.m. and 11:00
p.m. Eastern Daylight Time (EDT)* (2:30 a.m. to 4:00 a.m. GMT August 16th)
where Dr. Ganz and Dr. Weiss will answer your questions about the memory and
concentration challenges that can happen during and after breast cancer
treatment.
Our guest speaker will be Patricia A. Ganz, M.D. Dr. Ganz is a medical
oncologist and serves as Director of the Division of Cancer Prevention and
Control Research at the Jonsson Comprehensive Cancer Center at UCLA Medical
School. During the past 20 years, Dr. Ganz has focused on understanding how
people adjust to the diagnosis of breast cancer, including its effects on
their physical, emotional, social, and sexual well-being. Dr. Ganz developed
a way to predict which people are likely to experience significant
psychological distress in the year following their diagnosis, and has
completed several studies examining the quality of life in breast cancer
survivors. Her current research is focused on understanding the biological
causes of fatigue, cognitive problems, and sleep disorders in breast cancer
survivors. Dr. Ganz is also a member of the breastcancer.org Professional
Advisory Board, which you can read about here:
http://www.breastcancer.org/pab.html
The conference moderator will be Marisa Weiss, M.D., Founder and President
of breastcancer.org. Dr. Weiss is a radiation oncologist specializing in
breast cancer, and serves as Director of Breast Radiation Oncology at
Lankenau Hospital in Wynnewood, Pa. She is the author of Living Beyond
Breast Cancer, and the founder of a national nonprofit organization of the
same name. Dr. Weiss received the 2003 Professor of Survivorship Award from
the Susan G. Komen Breast Cancer Foundation and was selected as Doctor of
the Year 2005 by Philadelphia Magazine. From 1998 to 2004, Dr. Weiss
co-produced and appeared on the NBC Today Show's Special Breast Cancer
Series. Dr. Weiss is a member of the breastcancer.org Professional Advisory
Board, which you can read about here:
http://www.breastcancer.org/pab.html
To join the conference, go to www.breastcancer.org any time between 9:30
p.m. and 11:00 p.m. EDT* on Tuesday, August 15th and click on the "Join
Conference" button. No special software is required. A transcript of the
conference will be posted on our site by August 23rd.
I look forward to having you join our Ask-the-Expert Online Conference next
week!
Take care,
Marisa
Marisa Weiss, M.D.
President and Founder
www.breastcancer.org
*breastcancer.org welcomes conference participants from all over the world.
To help you figure out when the conference will take place in your time
zone, you can compare your local time to the current time on the East Coast
of the United States. See:
http://www.breastcancer.org/time.php

Radiation

2006-08-20 20:34:34

Did you ladies notice on the news about having radiation treatments
and how it sets off the security system in airports and they are also
saying with the court system also???...I know my brace sets it off
with the courts and I feel so weird as I have to take my brace and
socks off so they can see the scars...my foot also does it as they had
me go back through....had to let ya all know...hope everyone is doing
well...and nope no vacation this year...I'm really upset about it but
what can ya do...talk later....Marge

Hello It's me Melissa

2006-08-20 04:23:36

Hi All!

re:just checking in/Details

2006-08-20 01:23:38

Actually its a 4 bdrmw/2.5 bath/family room /living room. The 4th bedroom
is actually like a loft overlooking the livingroom. We would use that room
for an office/guest room. Lot size is 8400 sf, house is 2 story and 1875 sf.
Not that huge is it for the price of 381,000 but it sure doesn't get any
better than that in southern California. Will attach a icture of the
outside so you can get an idea of just how little you get here for that much
money. Not much, and sure nothing fancy!!!

passing along info

2006-08-19 21:37:48

I thought Id pass this along to members that may not have heard of this new
information or who are not a member of breastcancer.org.
Hope some of you find it informative if not helpful.
Debbie
Dear breastcancer.org Community Member:
The American Society for Clinical Oncology (ASCO) showcases the latest
advances in breast cancer science at its annual meeting each year. Our
Research News articles provide you with easy-to-understand summaries of
those advances and an interpretation of what they may mean for you. This
month, in the second of two ASCO Research News editions, we offer reviews of
these new studies, as well as reviews of the benefits and side effects of
aromatase inhibitors:
Raloxifene As Effective As Tamoxifen in Reducing Risk of Invasive Breast
Cancer
<http://www.breastcancer.org/r_0607a.html
Raloxifene and Tamoxifen Offer Similar Quality of Life
<http://www.breastcancer.org/r_0607b.html
Whole-body PET Scans Have High False Positive Rates for Breast Cancer
<http://www.breastcancer.org/r_0607c.html
Calcium and Vitamin D Supplements Don't Appear to Reduce Risk
<http://www.breastcancer.org/r_0607d.html
You can read all four reports at:
<http://www.breastcancer.org/r_0607.html
I hope you find these reports helpful and informative.
Sincerely,
Marisa
Marisa Weiss, M.D.
Founder and President
www.breastcancer.org

REMOVED MEMBER

2006-08-19 18:47:37

I received an ad from this person at which she said"YOU HAVE WON"
TRIED TO SEND AN EMAIL BUT IT WAS RETURNED...just in case anyone
wondered why...she tried really hard to get this approved but not..

Just checking in

2006-08-19 09:56:09

Hi Everyone,
Been quiet here...I know it's summer and everyone has gone on
vacations and other things...been hot here.....I'm doing good ..now to
wait until September to go in for my foot...blahhh...my granddaughter
has been playing softball this year and has done well...they won the
state divison last night and if they win their last game on tuesday
night they win the state division for fast pitch...would love to see
that...my garden is doing well but my peppers didn't do good at
all...had to pull them all out...also been waiting for the test
results for my neice as she had to go in to make sure that her Cancer
hasn't spread anywhere else..they say that with thyroid cancer it can
very easily..I pray that it didn't..well going to go all hope everyone
is well...thinking of everyone..hugs to all..and best wishes...Marge
HEY DEB HOW ARE THE FIRES THEIR AND DID YOU FIND A HOUSE YET
AND MELISSA BEEN THINKING ABOUT YOU..

Hi Peggy

2006-08-19 03:13:19

Hi Peggy,
Was wondering how you are doing??...My husband has gone back to
his old ways again but this time I'm not saying anything to him..I
figure that he will not change ..he takes me to tag sales on
Saturday's and right now they are getting to be boring..I need a
VACATION...I told him this week that I need to get away before I go in
and have more surgery on my foot..he just looked at me and
said ...OK...surprised me..now to figure out where we can hide out for
a week..just hate the thought of being in another cast for 4 to 5
months and the doctor can't promise anything..well going to go...have to do
laundry..talk later...Marge

hello everyone- new to the group

2006-08-19 00:39:28

I am going to approve this post although we do not allow advertising on this
board. I will however take out the link she has inserted. Should Anne become an
active member of the group then she can let us know about her "BOOK" later or if
any of you are interested now you could email her directly.
Welcome to the group Anne.
Deb
Hi everyone!
I am a four year breast cancer survivor. My name is Anne Marie and I
live in Massachusetts, north of Boston. On Dec. 11, 2001 (I will never
forget that date) I was diagnosed with breast cancer, which led to two
lumpectomies, a lymph node dissection, 12 weeks of chemo, and 48
radiation treatments. My last treatment was on July 3, 2002.... talk
about a way to celebrate Independence Day!
It has been a long journey, and I believe I am still on the journey and
that I will always be.
Can I ask how y'all deal with the fear of recurrence? For me, it's a
matter of remembering to stay in this present moment, which of course is
easier said than done.
I wrote a book about my journey with breast cancer, and how I managed to
stay on the "Bright Side of the Road" with it. If you're interested, you
can read more about it on my
Bright Side of the Road
<http://www.kaleidosoul.com/brightsidebook.html
Foxfire, use this page <http://www.kaleidosoul.com/brightside.html
instead).
Thanks for listening... it feels good to find you all here. Hope to get
to know you better soon.
Peace, joy,
Anne Marie Bennett

Mastectomy Hospital Bill in Congress

2006-08-18 12:02:40

Subject: Breast Cancer Hospitalization Bill - Important legislation for all
women
Dear VAHC Members,
I realize that this issue is not home health specific but we have so many
women working in our industry, I just could not let this issue pass by
unnoticed.
Mastectomy Hospital Bill in Congress
If you know anyone who has had a mastectomy, you may know that there is a
lot of discomfort and pain afterwards. Insurance companies are trying to
make mastectomies an outpatient procedure. Let's give women the chance to
recover properly in the hospital for 2 days after surgery.
It takes 2 seconds to do this and is very important...please take the time
and do it really quick!
Breast Cancer Hospitalization Bill - Important legislation for all women.
Please send this to everyone in your address book. If there was ever a time
when our voices and choices should be heard, this is one of those times. If
you're receiving this, it's because I think you will take the 30 seconds to
go to vote on this issue and send it on to others you know who will do the
same.
There's a bill called the Breast Cancer Patient Protection Act which will
require insurance companies to cover a minimum 48-hour hospital stay for
patients undergoing a mastectomy. It's about eliminating the "drive-through
mastectomy" where women are forced to go home just a few hours after
surgery, against the wishes of their doctor, still groggy from anesthesia
and sometimes with drainage tubes still attached.
Lifetime Television has put this bill on their web page with a petition
drive to show your support. Last year over half the House signed on.
PLEASE!! Sign the petition by clicking on the web site below. You need not
give more than your name and zip code number.
HYPERLINK
"http://www.lifetimetv.com/health/breast_mastectomy_pledge.html"
\nhttp://www.lifetimetv.com/health/breast_mastectomy_pledge.html
Marcia A. Tetterton, MS
Executive Director
Virginia Association for Home Care
8001 Franklin Farms Drive, Suite 110
Richmond, VA 23229
804-285-8636
HYPERLINK "mailto:mtetterton@..."mtetterton@...
www.vahc.org

Checking in!!!

2006-08-18 09:54:28

Hi Ladies,
I am just checking in with each of you. I am not able to check the
group daily and feel so disconected and have no clue what is going on
with each of you when I am able to make it on. I am praying for those
of you having a hard time and happy for those of you who are doing
well. You are all in my thought and prayers!!
Hang tight girls!!!
Jessica

Trying to cool off !!!!!

2006-08-17 21:28:40

Hi Deb,
Been hot and humid for a few days...glad my husband bought me that
pool as it sure does help..going back in ...also going to see my
Oncologist on Friday so I know that he will order more test's...and as
for Lilly...I know you get sick but you have only one more to go ..you
should go and finish..hey your going to have to tell me one of these
days to finish it all...good luck with it..take care all and have a
good night...my Big Brother's starts tonight thank goodness..hugs to
all...Marge

breast cancer.org

2006-08-17 20:17:41

I thought this might be of interest to many of you.
Take care everyone and let us know how you are each doing.
Deb
**************************************************
You are receiving this email because you signed up for breastcancer.org's
Email Updates. To unsubscribe, please follow the link at the bottom of this
email.
****************************************************
Dear breastcancer.org Community Member:
Join us tomorrow night, Wednesday June 21st between 9:30 p.m. and 11:00 p.m.
Eastern Daylight Time (EDT)* (2:30 a.m. to 4:00 a.m. GMT June 22nd) for this
month's Ask-the-Expert Online Conference: Updates from ASCO. We'll talk
about recent advances in breast cancer treatment, updates on breast cancer
genetics, information on diet and risk of recurrence, and more.
Earlier this month, the latest findings in breast cancer research were
reported at the annual meeting of the American Society of Clinical Oncology
(ASCO) in Atlanta, Ga. breastcancer.org Professional Advisory Board members
Jennifer Griggs, M.D., M.P.H. and Nicholas Robert, M.D. were there, and
tomorrow night they'll be available for your questions about treatment
advances, risk, and more. Learn more about Dr. Griggs and Dr. Robert here:
http://www.breastcancer.org/pab.html
If you'd like to ask a question relating to UPDATES FROM ASCO but will not
be able to join the conference tomorrow, you can submit your question now
at:
http://chat.liveworld.com/events/chat/ibreast/.
We'll answer as many questions as we can during the conference. A conference
transcript will be posted at breastcancer.org by June 29th.
To join the conference, go to www.breastcancer.org any time between 9:30
p.m. and 11:00 p.m. EDT* tomorrow and click on the "Join Conference" button.
No special software is required.
For more details about the conference, go to
http://www.breastcancer.org/conf.html
I look forward to having you join our Ask-the-Expert Online Conference
tomorrow!
Take care,
Marisa
Marisa Weiss, M.D.
President and Founder
www.breastcancer.org
*breastcancer.org welcomes conference participants from all over the world.
To help you figure out when the conference will take place in your time
zone, you can compare your local time to the current time on the East Coast
of the United States. See:
http://www.breastcancer.org/time.php

Chemo

2006-08-17 19:41:29

I am suppose to get my last chemo on July 5, I am thinking
about not taking the last one because I have been so sick with the one I just
finished. Has any one ever refused Chemo? Lillie Billingsley

Fw: {CindyH-andFriendsTagRequests} Fw: SO VERY IMPORTANT!!!!! **PLEASE DO NOT DELETE**

2006-08-17 05:26:44

PLEASE, PLEASE watch this video. This is very important to know, and then
send to everyone you know!!!!! Please check yourselves.
Melissa

Thank you!!!

2006-08-17 04:28:52

I just wanted to thank all you ladies for your support. You are truley
wonderful women and i am so blessed....
Jessica

An Introduction

2006-08-16 19:35:42

I have only talked to Marge so I am certain the rest of you don't
have a clue as to who I am. My name is Michele and I am the owner
of this support group. I would like to thank you ladies who take
care of this group for me from the bottom of my heart. It means a
lot to me. I started this group a year ago when I couldn't readily
find a good online support group. The group I go to where I live
only meets once a month and I felt at the time that something was
lacking in only meeting once a month. Since then I have become busy
with everyday life and running my kids here and there along with
other things. I have been dealing with other health issues lately
and still doing the whole cancer scare program, as I like to call
it.
You go through the whole ordeal whether you only have a lump removed
to follow up with radiation or the full round of removal and
reconstruction and chemo. I first found out I had a problem in
August of 2002. I had DCIS and was given three options. 1) Do
nothing and wait 2) remove the lump and go from there 3) remove both
breasts and follow up with whatever was needed. To me nothing
wasn't an option so I chose the second choice as I felt the third
option was a bit over the top for what they explained to me as my
condition, I still hope and pray that was the right choice.
I had the lump removed and needed to follow it up with 2 1/2 months
of treatments, burning me to a freakin' crisp. After it was said and
done and the burn became a very lovely tan I noticed that my right
breast had shrunk a great deal. I was told that it was not unusual
for this to happen. I was not informed of this before hand so
needless to say it worried me greatly. To this day my ribcage area
is still tender along with the surgery site and surrounding area.
Lifting my arm over my head quickly still strains a bit but for the
most part that has gone away. I have a hardening which I can only
assume is scar tissue from the surgery. Since this has happened to
me I have had a couple of scares. In fact I go next month for
another round of mammograms and ultrasounds on my left breast where
a small something or other was detected. That's why when I started
having lower back pains and then found out I have a ruptured disk
and arthritis happily eating away at other disks I was actually
relived for a change to have the worrying over cancer pushed aside.
But as always time flies and I'm facing finding out if this place is
still there, grown, disappeared or whatever. As many of you know
it's the not knowing that worries the crap out of you.
I read the posts as they come along and can't thank you all enough
for helping one another, my group has become exactly what I had
hoped for when I started it. I also hope that you all forgive me for
not having the time that I wish I could to be here all the time and
taking part in the conversations. I am a stranger to my own site
and feel odd about responding to someone now when I see they have a
question about anything or are just sharing their experience.
My cancer was found so early that one doctor said he would rather
call it pre-cancer. I had the lumpectomy and it came back showing
that I had cancer cells surrounding the lump but they were inactive
at the time. So since I have recovered almost completely and feel
like nothing ever happened I don't feel like I had cancer at all
compared to what so many of you have gone through. But I am assured
constantly by my local support group that cancer is cancer
regardless if you were lucky enough to catch it so early or whether
you had to deal with a whole lot more. I still feel odd calling
myself a survivor but I know I am one. In fact you know you are when
your cancer doctor calls you up to ask you if you are coming to the
Cancer Society's Survivor Dinner. :-)
There is so much that goes through your mind, so much you worry
about, pray about and cry about and feel like those around you don't
have a clue what you're going through. They want to help you and
are not really sure what they should do. I think a simple hug and
good listen helps so much. I want to thank each of you who take the
time to respond to someone when they write a post here. From all I
have read you all are a very caring group and I'm proud of that
fact. Thanks for taking the time to read my short novel and I hope
I haven't put all of you to sleep with how long it is. ;-)
God bless and take care of yourselves because it is very important
to do.
Michele

Good News!!!!

2006-08-16 17:21:53

I just wanted to let everyone know my biopsy came back negative!!!
YEA!!!! It was just a mass in my breast tissue, completly harmless.
What a relief!!! Thank you so much for all your support, caring and
well wishes. It was so appreciated and really helped me more then you
know! Thank you...
Jessica

This can't be happening!!!

2006-08-16 09:41:04

I just got home from my dr appt. They did a biopsy after my mammogram.
My dr said this is the only was he can tell 100% what my lump is. He
couldn't tell from a mammoprgram, sonogram or MRI! ladies, I am so
scared. I can't fight it again, I just can't. what am I going to do???

Need some support

2006-08-15 22:09:34

Hello Ladies,
I am REALLY in need of some support. Some of you may remember I was
diagnosed with Breast Cancer about 2 years ago at age 19. I have been
in remission for about 1 1/2 years. However, we found a lump the other
day. Over the past week I have had a sonogram, mammogram and MRI.
Today my Dr is going to call with the results. I am REALLY scared. I
don't know what to do. I don't think I would be able to beat it again.
My boyfriend is gone to NY (he really wanted to cancel his trip to be
with me, but since the trip was my gift to him for his birthay I made
him still go. He is back there for the Boxing Hall of Fame- he is a
huge boxing fan. I bought the tickets 3 months ago). I just feel
really alone and scared.
Jesica

Marge and other diabetics

2006-08-15 21:35:34

This is not BC related but I hope someone here will know of this:
I talked to my insurance's (Etna) Health Nurse this afternoon. She calls me
every two weeks due to diabetes/ coronary artery disease/Long QT syndrome.
The last couple of days my sugars have been elevated as I am out of
metformin and glipizide. Kaiser will not fill them as we had an insurance
change and no longer can go to Kaiser medical groups. Waiting for an
appointment with our new primary Dr. on the 6th to resolve all these
problems. Ok so back to the point. When she called I was out of breath and
had to explain that I had been exercising and that's why. I told her about
blood sugars being high and I was exercising to help bring them down. She
told me that We diabetics had to be careful about exercising because if our
sugar was 200 or 240 ( forgot which she said) that the exercise would tell
our body to produce more sugar thus bringing our blood sugar even higher.
She said that if the numbers were below that then exercising was good and
would help bring them down. In the last 35 yrs I have never heard this
before. Two brothers and a mom and dad and aunts and uncles diabetic and
have always heard to exercise after meals to keep it down to a close to
normal range.
Ok, Have any of you heard one way or the other? Is this nurse out of whack
or is it that I have been kept in the dark in the diabetic dept regarding
this and so many other diabetic issues along with my family.
Please help and advise.
Debbie

Radiation Changes?

2006-08-15 12:51:01

Hello...I wrote in a while back introducing myself...and I have just been
reading because I have felt my Breast Cancer was very small and I am not dealing
with as much as a lot of people on here....and as I have learned a lot from you
all I feel my contribution is minor at most....but I wanted to ask
something...to the ones who have just had Radiation...My cancer was in situ so I
just had radiation...had my nipple removed and 6 1/2 weeks of Radiation...the
last day of treatment was March 20th...and I was the basic tired and such as
they said I probably would...and it was painful for a while....but I felt it was
healing OK...and I had a point where I really thought I was doing better and
healing quite quickly....then I began to have really bad pains in my breast and
it was swollen...it concerned me so I went to my oncologist surgeon and they
tried to get fluid out because it was swollen and warm to touch...but nothing
was there...and then they did an ultra sound to see if there was fluid or
anything to be concerned about...and they found nothing...so they said it was
Radiation Changes and it was normal and could last a while...I asked how long
could it be and she said it could be up to 2 years...I was kind of surprised to
hear that...and very discouraged...because I am so tired of having constant
pain...I had been diagnosed with Fibromyalgia about a year ago...but it seems
since the diagnoses of Cancer the pain from fribromyalgia has taken a break...so
I'm guessing the diet changes I made helped with that....especially giving up
diet coke...anyway...my question is...have any of you had these Radiation
Changes and is this normal and...and also it seems that it is still sensitive to
sleep on that side and is this normal and for how long...and I also have been
feeling a tightness in the muscle from under my arm to my breast...kind of hurts
to stretch it out...not bad...is this all normal and have you experienced these
things?
Anyway...Thanks for listening...Debbie

marge in hiding?

2006-08-15 08:44:21

Where are you marge? Everything ok ? you are being swfully quiet today.
Special hugs,
Deb

Mary Jo, Deb and Marge

2006-08-15 00:44:52

I just wanted to say thanks to you for responding to my post for
help. I can't thank you enough for your support and encouraging words.
Thank goodness I listened to my gut yesterday and called the doc. He
didn't like what specifics he was hearing and sent me straight to the
ER. Thank goodness! I got a ton of IV fluids, better anti-nausea
meds and some Dilaudid for the body aches, and I feel SO MUCH BETTER.
Unfortunately now I am doped out of my mind, which is a difficult
state to live in. But I'll be easing out of all those drugs in the
next few days and will then hopefully be feeling better.
Thanks again to everyone for your encouragement!!! Melissa

advertisement approved.oops

2006-08-14 20:28:17

Marge and all, I apologize for approving a post that appears to be an
advertisement. Should we leave it or delete it?
Deb

An Incredible Update

2006-08-14 13:36:36

Sent: Monday, May 29, 2006 3:59 PM
Subject: An Incredible Update
Hi Everyone,
Just wanted to share with you an update with Lori Peters, after her
conversation with Carole this morning.
After Carole shared this with me this morning, I am completely
satisfied as why I started sharing Xango, and why I love this
product. And why, I have absolutely no skepticism, no hestitancy,
and even more drive to share this with people.
As some of you know, I lost my dad to cancer, 2 weeks after his 50th
birthday. As I shared my story, and part of my why to Carole in Las
Vegas (and yes it was emotional, we both were crying...which you
know is not like me), this just completes it.
I only wish this juice was out 7 years ago when he was diagnosed,
and maybe...He worked hard, and put his dream to the side
thinking "when I retire" (which would have been in a couple of
years, cuz he had a good J
going to enjoy it, only to have it all pulled out underneath
him...So my message, is not to wait, go after your dreams, and live
your life to the fullest now..(Ok, and now that I have shared a bit,
here is the update!)
Lori called Carole this morning, and talked for an hour. In this
hour she did not once cough. She called to tell Carole, thank you
for this gift. As she did this, she shared that she took her
biggest breath this morning when she woke up, the biggest breath in
months. And as she was talking, she said "Carole I am calling to
tell you I am dancing in my living room right now". Laughing, hope,
goals, and optimism all came through her.
As some of you know, Lori came to Vancouver in February, as a last
hope to fight her cancer. She was given weeks to live, and had
stage 4 cancer. She had liver, bone, and lung cancer, already
having breast cancer the year before. She came to do alternative
measures with a naturalopath here, hoping to help. Carole, not
knowing Lori, and at the time, only a consumer of Xango, remembered
reading or hearing that the juice might help with this disease. She
did the research (and then realized what she had her hands on), and
offered the product/info to Lori. Lori did try it while here, but
not consistently, as she was trying not to interfere with the other
alternative. Not really knowing what to do, although she kept
reading testimonies, going to meetings.
Finally, her cancer started to be aggressive. She was to the point
of a lot pain, the tumors were growing (so the other was not
working), she was in and out of consciousness because of the
weakness, she was not eating, and whatever she did consume, she
would vomit. After doing some tests (which could not be finished
due to the inflammation in her chest), the doctors felt, and so did
Carole and I, it was time and urgent to get her home. As a health
care worker, and someone who has seen someone at the end of this
disease, I really felt she was palliative and near the end. I urged
Carole to get her home to the family. The next day they flew out.
Carole called from the plane, and said Lori would like to hear from
you, but don't expect anything from her, as she is too weak to
talk. At this point, she could not say a word without coughing. So
I told her she was in my heart, and I will pray for her, and go be
with her kids. She did manage to say, she was going to try the 21
day challenge. At both airports she needed wheelchairs, and help as
her condition was that bad.
Now she is on day 13 of the 21 day challenge. She has gained weight
(7lbs), no pain, energy, sleeping through the night, eating 3 meals
a day, and no coughing (as the conversation with Carole, she did not
cough once in the hour). She has just ordered 5 more cases to do
the 21 day challenge again, and to make sure she never runs out. As
she said, she will never be without xango again. Even if the cancer
gets the best of her, she is thankful for the quality of life she
has now and the time it is giving her. But she does feel, she is on
a real good journey right now. We are crossing our fingers that she
will have one of those testimonies that we hear and read about.
Again, even if I don't make huge money, or even go up the ranks of
leadership with Xango, this is enough for me. (of course I am not
stopping at this and I cannot wait to help others). This is a
passion of mine, to know that it can give someone a chance, quality
of life, and time. And perhaps be a part of a change, or something
meaningful (plus all the charities etc.). This is what it is all
about. To share, and possibly change people's lives.
(this is just what the product can do, nevermind changing people's
lives via the business!).
One thing I shared with some people, is that I always wanted to help
people. And if you don't have to go through what I have, loosing
someone you love to disease, to early, then this is my mission and
my dad's memory. If I can help those suffering already, or know
that I can offer something to possibly prevent what you don't know
might be around the corner, this is why.
My why has changed when I first started. Of course, this was one of
my reasons from the start, and I also wanted to change our
lifestyle, and not have Andrew work so hard, and have more time
freedom. But now it has increased. This is an avenue to do
meaningful, selfless acts, to help people and children in this world
who do not have a chance. Let us not forget, ignore, and start
making changes to make a difference. (yes I am getting deep, and
yes some of you know Angelina Jolie is beating me to the punch of my
dream...but you better believe it, I will, when I can afford to
visit/donate/help with communities around the world...and probably
end up with a lot of kids!!!!!)...
So, a bit of my dreams, why so many of us are in this business, and
an incredible update. Take from it what you choose.
Jen :)
XanGo
http://monique.gomangosteen.net
Testimony Website
http://www.goxanthones.com/moniquea/
Call this # (212) 990-6070 for a 7 min. presentation than
call Monique @ 866-814-3400
e-mail: monique_queenie7@...

New Here!!

2006-08-14 07:19:55

My name is Jessica. I am 22. In October 2003 I was diagnosed with
breast cancer. Here is my story.
Earlier in the year of 2003 I came across a lump in one of my
breasts. I didn't think much of it since I was young, even though
breast cancer does run in my family. A few months later I went in
for my yearly women's exam and my doctor found the lump as well. She
asked me how long I had it and I told her that I found it a few
months earlier, but that I wasn't worried about it. Since breast
cancer does run in my family she asked me to go see a breast
specialist to have it checked out, just to be sure. A few days later
I made my appointment. The doctor did a sonogram and felt around on
the lump. They determined it was just fluid build up. They said we
could have it drained if I wanted to, but since it wasn't bothering
me I decided to just leave it. While the were finishing up the
sonogram the nurse found some shading that she thought was kind of
odd. She called the doctor in and they were both looking at it on
the screen. The doctor then tried to feel for anything in my breast
in that area and they couldn't feel anything. The decided to
schedule me for a biopsy a few days later. I wasn't even thinking
cancer at that time. So the 3 days went by fast, I was nervous just
because I hate needles and stuff like that. My mom went with me and
I didn't watch any of it, but later she told me what they did. They
took this really long needle and slowly numbed my breast all the way
down into my breast were this hidden lump was. Then the made an
incision and inserted the instrument that is used in the biopsy.
They made there way down to the lump which was about the size of a
small pea. Since the mass was so small anyways, they took it all
out. I remember the last minute or so the numbing stuff wore off and
I could feel the sucking and cutting deep in my breast. It was
horrible. They then stitched me back up and I had to wear a sports
bra for the next day or so. I remember being so sore, especially at
night since it seemed that I always rolled over on that side. We
were expected to get the results back on a Monday, my surgery was on
a Friday. I was a little anxious over the weekend, still at this
point I wasn't thinking cancer. I went to work on Monday as
scheduled and arranged for my doctor to just call me there with the
results. Well, he did call and all I remember his saying was it was
cancer, but they took it all. He didn't feel the need for follow up
treatments, but that he wanted to see me in 6 months for a check
up.. I was a little concerned, but I figured he was the doctor and
he knows what is best.
So, 6 months went by and I didn't think much of it. I went to my
appointment and figured everything would be fine. Nothing could have
been further from the truth. Again they were feeling around and
doing the sonogram and there was some more shading in the same area
as last time, but it was bigger. I went in for a mammogram (my first
ever and now I have to have them every year for the rest of my life
and they hurt) Before he even had to say anything I knew it was
cancer. I was scheduled for a lumpectomy the next day. I was so
scared, but did fine. I then followed it up with 6 weeks of
radiation everyday. It was horrible. I was nauseated, tired, weak,
cranky and my breast was so sore, like I serious sunburn. It hurt to
bath, it hurt to sweat, it hurt to sleep. It was horrible.
I remember being so angry at my doctor. I feel he didn't take my
health seriously. He figured I was too young for cancer. But
obviously I wasn't. I feel that if we did some follow up treatments
after my biopsy the first time maybe it would have saving me from
having a relapse, having to go through it all. I do feel lucky
however that I did go in and have the lump checked, even thought it
was nothing they were able to find the lump that no one could feel,
the cancerous one. I am happy to say two years later and I am still
cancer free. I want to spread my story so that women can see early
detection does save lives. That cancer could have continued to
spread and get worse and worse had I not been smart about getting
checked. Although being diagnosed with breast cancer at 19 is VERY
rare, don't think that it CAN'T happen, It can and does. Get a
second opinion if something doesn't seem right. It is your body and
your life. We only get one chance and I was lucky enough to have a
re-do.
I am happy to say today I am doing well and I am healthy. I started
consistently going to the gym about 3 months ago and I have gained
energy and am feeling great!
Well, if you are still reading, thank you! Sorry it was so long. I
just wanted to get my story out there and hopfully work my way into
your conversations. Thanks and i hope to get to know and help you as
well as some of you helping me! Thanks!
Jessica

Please, support needed!

2006-08-14 05:43:04

This is my first post here. I had my first chemo treatment for breast
cancer on Wednesday and I can't believe how bad this is. I'm using
Cytoxin and Ta